Caregiver Support Groups for 
Stroke Caregivers

American Stroke Association (ASA), an affiliate of American Heart Association (AHA), offers a "Stroke Support Group Finder" tool on the ASA website. Support groups for survivors and caregivers are key to recovering from stroke. Support groups connect you with others who have similar stories. It’s where you will find new friends, support, hope, and encouragement as you embark on your post-stroke journey.

Note: Please be advised, there are system limitations within this tool. Not all Stroke Support Groups are listed in this tool.  Search is by zip code, so you must enter a zip code to find a group within a maximum 50 mile radius of said zip code.   Search by geographic city, area, etc is not possible in this tool per se... however a possible "work-around" given the system limitation is to use an online search engine (Google, DuckDuckGo, etc) searching for a Stroke Support Group by geographic city name (etc) and results may or may not come forth when using this tack.

SPECIALTY GROUP.  SPOUSAL & RHD Tenet. This support network is a peer founded and organized group of spousal caregivers looking for support from and striving to create a sense of community with others navigating similar situations.  As spousal caregivers, we have had our relationships, family circumstances, and day-to-day lives completely upended, as the result of our spouse/life partner suffering and surviving a life-altering stroke (or similar medical event).

On hiatus since March 2026

Rochester Regional Health (RRH) offers a Stroke Caregiver ONLY Support Group with facilitator, Angelina Wronski, RN/Stroke Coordinator.   

Group flyer

EXCEPTION. SPECIALTY GROUP AND UNIQUE STRUCTURING.  FOR PERSONS WITH RHD AND THEIR CAREGIVERS & LOVED ONES ONLY.    NOTATION - There is no known dedicated RHD Caregiver Support Group.  Indeed, any type of support group with focus on RHD and their caregivers is rare.  Being that this Right Hemisphere Support Group is inclusive of RHD Caregivers, this group is co-listed herein among the Caregiver Support Groups cohort listing.  It is not a Caregiver ONLY Support Group, but there is a component of this group beneficial for Caregivers.

The group is facilitated by two, licensed, experienced speech-language pathologists (SLPs) with depth of knowledge in Right Hemisphere Brain Damage (aka RHD).

Contact Melissa Johnson at mjohnso2@naz.edu for details and login information

Just ASK of Rhode Island & Rhode Island Hospital (RIH, Providence) collaboratively offer a Stroke Caregiver ONLY Support Group, co-facilitated by Elaine McDonald, LICSW - Clinical Social Worker.

Stroke Caregiver Support Group, organized by StrokeAwarenessVermont.org 

Flyer

SPECIALTY GROUP.  This Caregiver ONLY Support Group is offered as a part of Portland State University’s Adult Communication Disorders clinic within the Speech and Hearing Sciences program.  The Caregiver support group is held September through June.  Some scheduling of meetings may diminish when college is not in session, AND some meetings may be held during the summer months when college is not in session.  All meetings are virtual.  (Some meetings are "hybrid", and an annual picnic is "in-person" only.)  Although this group is mainly focused on caregivers for someone with aphasia other communication/cognitive disorders due to stroke (Right Hemisphere Disorder, aka RHD, included) are addressed. The co-facilitators are Susan Ginley, M.A., SLP & Susan Poulsen, PhD, RN. 

Stroke Awareness Oregon (SAO) Caregiver ONLY Support Group meetings are facilitated by Mindy Laidlaw, OT.

on hiatus effective mid 2026

SAO also offers a number of other support groups.

Beyond Stillness offers a support group for Caregivers (aka carepartners) and supporters who are invited to gather in a welcoming Zoom environment each month to discuss caregiving challenges and successes. Together, we reflect and share wisdom, purpose, connection, and hope. 

Beyond Stillness also offers things other than this Caregiver Support Group, which can be found here: www.beyondstillness.org/communitygatherings

Good Shepard Rehabilitation Hospital's (GSRH) Caregiver Support Group.

On hiatus since March 2026

GSRH also offers other support groups.

Pacific Stroke Association (PSA) Post-Stroke Caregivers ONLY Support Group.   Co-facilitators: Dee Jay Hubbard, SLP, PhD & Jyoti Digwalekar MS/ OT- CEO/ Founder Rehabcore Therapy And Wellness.

PSA also offers a number of other Stroke Support Groups. See pacificstrokeassociation.org/stroke-support-groups for more info.

Stroke Support Association (SSA) of Long Beach, California, Caregiver ONLY Support Group discussions are led by varying trained facilitators for information sharing about caregiving, caregiver self-care, stroke, and opportunities to share problem-solving and community resources related to stroke and encourage socialization with new friends. 

No meetings held in April, August, December.

EXCEPTION.  UNIQUE STRUCTURING of this group. 

Virtual meetings: Two months per quarter (Jan, Feb, April, May, July, Aug, Oct, Nov) this Caregiver Support Group meets as a Caregiver ONLY Support Group.  

In-Person ONLY meetings: One month per quarter (March, June, Sept, Dec) this group meets as a combined Stroke Survivor & Caregiver cohort at one of the Atlantic Health System locales in New Jersey, AND accordingly day of the month and time of the meeting may vary for these combined group "in-person" meetings.

Facilitated by Kristen Boyd.

This Facebook Caregiver Support Group is neither an "in-person" nor "virtual" aka teleconferencing format type group, instead operates by methodology of a 24/7 postable facebook page, associated with Tufts University Medical School.

Members have option to read and to post questions or comments to the facebook group anytime.

Brain Injury Association of New York State (BIANYS) offers two monthly Caregiver ONLY Support Group meetings for Caregivers of a Person with Brain Injury.  

This  monthly afternoon Caregiver ONLY Support Group meeting is co-facilitated by Kelly Hindes (BIANYS) and Manny Pelligra (Caregiver),

Also see next item for BIANYS's evening meeting

Brain Injury Association of New York State (BIANYS) offers two monthly Caregiver ONLY Support Group meetings for Caregivers of a Person with Brain Injury.  

This monthly evening Caregiver ONLY Support Group meeting ia facilitated by Kelly Hindes

See previous item for BIANYS's afternoon meeting.

Brain Injury Association of Arizona (BIAAZ) FoBI Caregiver Support Group is open to the family members of brain injury survivors. 

Note: Group meets in MST year-round (aka "Arizona Time"). 

Group is open to participation statewide, and across the USofA, for family members of loved ones who have had a brain injury. Facilitated by BIAAZ staff.

Brain Injury Alliance of Connecticut (BIACT) Caregiver Support Group for Partner or Spouse of a person with Brain Injury.

BIACT also offers a number of other support groups.

Brain Injury Association of Massachusetts (BIA-MA)  Caregivers ONLY Support Group.

BIA-MA also offers a numerous of other support groups and in addition offers educational workshops and other presentations/programs.

Please click "More Info" to see a schedule of groups and other resources. In particular, one additional support group to be aware of.   A rarity to find a "Couples" group for couples dealing with Brain Injury.   See separate BIA-MA listing (below).

The Brain Injury Association of Iowa (BIAIA) Brain Injury Caregivers Support Group via facebook is a private, welcoming, supportive place for brain injury caregivers to come together to receive helpful information and resources. Operates 24/7.

DISEASE NON-SPECIFIC CAREGIVER SUPPORT GROUP. Finger Lakes Caregiver Institute at Lifespan of Greater Rochester in partnership with Rochester Presbyterian Home, offer a monthly Caregiver Support Group  for caregivers of older adults to share experiences, receive emotional support, and learn strategies for self-care and resilience. Through guided discussion and peer connection, participants will gain emotional support and a sense of community as they care for their loved ones.

Facilitated by Jennifer Sanfilippo, MBA.

Register here or contact lisa.beers@rph.org

EXCEPTION. SPECIALTY GROUP. COUPLES. NOT CAREGIVER ONLY.

Brain Injury Association of Massachusetts (BIA-MA)  “Couples Connecting After Brain Injury” Support Group Meeting – for Couples'.   

BIA-MA also offers numerous other support groups and in addition offers educational workshops and other presentations/programs..

Sometimes, it’s easier to just ask. That’s why AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Our agents can’t provide specific advice to callers, but they can suggest resources on a variety of topics.

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