Support Groups for
Stroke Caregivers
Please note that scheduled meeting days and times, facilitators, group hiatus, and even existence of a group, may vary from those listed, so check in advance before planning to attend.
Preface
To the navigator of this webpage as a Caregiver for a person who suffered and survived Stroke. This webpage is purposed to provide pertinent information regarding Support Groups for Caregivers. Having the information in one place to refer to hopefully will be of help for you in saving you time and frustration.
Please know that this webpage (and indeed the website) has been assembled as a resource, and hopes are that you will receive compassion, love, consideration and utility from this assemblage. All of which were an integral part of this website's assemblage.
This website originates from the Finger Lakes Region of New York State. A generalization about the listings scheme for this Caregiver Support Groups webpage. Higher on the list generalizes as groups geo-centric to Finger Lakes Region of New York State, and lower on the list generalizes as groups outside that home base.
Support groups for survivors and caregivers are key to recovering from stroke. Support groups connect you with others who have similar stories. It’s where you will find new friends, support, hope, and encouragement as you embark on your post-stroke journey.
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Note: Please be advised, there are system limitations within this tool. Not all Stroke Support Groups are listed in this tool. Search is by zip code, so you must enter a zip code to find a group within a maximum 50 mile radius of said zip code. Search by geographic city, area, etc is not possible in this tool per se... however a possible "work-around" given the system limitation is to use an online search engine (Google, DuckDuckGo, etc) searching for a Stroke Support Group by geographic city name (etc) and results may or may not come forth when using this tack.
SPECIALTY GROUP. SPOUSAL & RHD Tenet. This support network is a peer founded and organized group of spousal caregivers looking for support from and striving to create a sense of community with others navigating similar situations. As spousal caregivers, we have had our relationships, family circumstances, and day-to-day lives completely upended, as the result of our spouse/life partner suffering and surviving a life-altering stroke (or similar medical event). Meets in virtual type format via Zoom on 2nd Thursday evening of the month, however currently on hiatus effective March 2026. [Originates in Rochester & Finger Lakes Region of NYS. Representative Zipcode 14456]
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Monthly 2nd Thursday / hybrid type format meeting - Stroke Caregiver ONLY Support Group, facilitator Virginia Watts,RN , "hybrid" meaning simultaneously "virtual" via Zoom and "in-person" at Unity At Ridgeway (1st floor conference room, 2655 Ridgeway Ave, Greece, NY), 1:00-2:30pm ET.
[Originates in Rochester environs, NY Zipcode 14626]
Led by Elaine McDonald, LICSW - Clinical Social Worker, the group meets virtually every 3rd Wednesday of the month from 6:00 - 7:00pm ET.
[Originates in Providence environs, Rhode Island. Zipcode 02903]
Contact: Nakeesha Brown
Phone: 401-444-8237
Email: Nbrown1@brownhealth.org
Monthly 2nd Tuesday / "Hybrid" type format meeting meaning simultaneously "virtual" via Zoom and "in-person", Stroke Caregiver Support Group, organized by StrokeAwarenessVermont.org , held at University of Vermont Medical Center, at Fanny Allen Campus, 790 College Pkwy (in Colchester), Dunbar Conference Room, 4:00 - 5:00 pm ET. [Originates in Colochester environs, VT. Zipcode 05446]
Flyer: https://www.strokeawarenessvermont.org/for-caregivers
SPECIALTY GROUP. Each Tuesday per month a caregiver only support group is held September through June at 2:00 - 3:20pm PT. All meetings are virtual. This group is a part of the Portland State University’s Adult Communication Disorders clinic within the Speech and Hearing Sciences program. Although it is mainly focused on caregivers for someone with aphasia other communication/cognitive disorders due to stroke are addressed. The co facilitators are Susan Ginley, M.A., SLP & Susan Poulsen, PhD, RN. [Originates in Portland, OR. Zipcode: 97201]
Contact person is Susan Ginley at sginley@pdx.edu
Virtual meetings are held on the 1st Wednesday of the month at 3:00pm PT via Zoom. [Originates in Bend, Oregon. Zipcode: 97702]
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Phone: (541) 323-5641
Email: admin@strokeawarenessoregon.org
Beyond Stillness hosts personalized reflection sessions for stroke survivors. Our gatherings, retreats and workshops, further cultivate an engaging community.
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Monthly gatherings are held "virtually" on the 3rd Wednesday of each month from 3-4pm PT. [Originates in Bend, Oregon. Zipcode 97701]
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Contact & facilitator Molly Buccola, molly@beyondstillness.org
Meetings may include presentations or discussions about care for the caregiver, stress management, financial/life planning, local resources and more. Meetings are held virtually at 6:00pm ET on the 3rd Tuesday of each month.
[Originates in Center Valley, PA. Zipcode 18034]. Group currently on hiatus effective March 2026.
RSVP/Questions: Due to staffing changes, no contact information currently available.
Caregiver ONLY Support Group discussions are led by varying trained facilitators for information sharing about caregiving, caregiver self-care, stroke, and opportunities to share problem-solving and community resources related to stroke and encourage socialization with new friends.
SSA's virtual format meeting Caregiver Support Group meets via Zoom nearly every Wednesday from 11:00-11:50am PT. No meetings held in April, August, December. [Originates in Long Beach, CA. Zipcode 90807]
Email: info@strokesupportassoc.org
EXCEPTION. UNIQUE STRUCTURING of this group. As a norm, two months per quarter (Jan, Feb, April, May, July, Aug, Oct, Nov) this Caregiver Support Group meets "virtually" on third Wednesday of the month 2:00-3:00pm ET, meeting as a Caregiver ONLY Support Group. One month per quarter (March, June, Sept, Dec) this group meets "in-person" ONLY (NOT "hybrid") as a combined Stroke Survivor & Caregiver cohort at one of the Atlantic Health System locales in New Jersey, AND accordingly day of the month and time of the meeting may vary for these combined group "in-person" meetings.
Contact: Kristen Boyd LCSW ; phone (908)-522-4911 ; e-mail ahs.strokesupport@atlantichealth.org Preferred Contact Method: Phone
Groups are facilitated by Social Worker, Kristen Boyd. [Originates Summit, NJ, Overlook Medical Center. Zipcode: 07901]
This Facebook Caregiver Support Group is neither an "in-person" nor "virtual" aka teleconferencing format type group, instead operates by methodology of a 24/7 postable facebook page, associated with Tufts University Medical School.
Contact: Mrs. Lorna Caffrey, RN ; strokecaregiversupport@tuftsmedicine.org
Members have option to read and to post questions or comments to the facebook group anytime. The page will be monitored, Monday-Friday at which time questions and comments will be responded to. Open to folks throughout the USA. [Originates in Boston, MA. Zipcode 02111]
Co-facilitated by Kelly Hindes (BIANYS) and Manny Pelligra (Caregiver), afternoon meetings are held virtually on the 2nd Tuesday of each month, 1:00 pm – 2:30 pm ET. An evening monthly BIANYS Caregiver ONLY Support Group meeting is held virtually on the 1st Thursday evening of each month 6:30-8:00pm ET, facilitated by Kelly Hindes. [Originates in Albany, NY. Zipcode 12205]
Contact: Kelly Hindes, khindes@bianys.org
Open to the family members of brain injury survivors. Group meets via Zoom the 1st Tuesday of the month, 6:00 - 7:30pm ET. Group is open to participation statewide from family member or loved ones. Facilitated by BIAAZ staff.
[Originates in Phoenix, AZ. Zipcode 85034]
For more information or assistance registering, reach out to info@biaaz.org, call our Helpline at 888-500-9165, or text 520-310-3301
BIAC has multiple support groups available. Each group is slightly different, so why not “sample” a few of them and find one that feels like a good match for your needs and truly makes you smile. [Originates in Windsor, CT. Zipcode 06095]
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This group meets virtually via Zoom 7:00-8:00pm ET on the 4th Monday of every month.
Contacts:
Marie Leonard, PartneringwithGrace@gmail.com
Scott Moore, MooreScottj@yahoo.com, +1 (203) 233-2129
BIA-MA provides many different options for virtual and in-person meetings. Please click "More Info" to see a schedule of groups and other resources. BIAMA virtual Caregivers ONLY Support Group Meeting is held on the 4th Tuesday of each month 1:00-2:30pm ET. [Originates in Westborough, MA. Zipcode 01581]
Contact: supportgroups@biama.org
The Brain Injury Association of Iowa’s Iowa Brain Injury Caregivers Support Group is a private, welcoming, supportive place for brain injury caregivers – spouses, significant others, parents, siblings, friends, etc. – to come together to receive helpful information and resources as well as to connect and receive peer support and encouragement from individuals with shared, unique experiences.
[Originates in Iowa City, Iowa. Zipcode 52245]
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Contact: +1 (855) 444-6443, aandrews@biaia.org, info@biaia.org
Sometimes, it’s easier to just ask. That’s why AARP has a dedicated, toll-free family caregiving line for people taking care of a loved one. Our agents can’t provide specific advice to callers, but they can suggest resources on a variety of topics.
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Phone: 1 (877) 333-5885
Hours: Monday to Friday, 8:00am - 8:00pm ET
Also available in Spanish at 1 (888) 971-2013.